Tuesday, January 29, 2008


Thank you to everyone who got in touch to wish Cal a happy birthday.
We are so proud of our little boy. Anyone who has read anything about Type 1 SMA will know why his second birthday was so important. I think it's better not to go on about it here. Janet and I have been thinking and talking about it a lot over the past week. I think we both did a good job not letting our emotions carry us away into a headspace that would have actually taken something away from Callum's special day.
It's Tuesday morning and the house is still festooned with birthday balloons. Callum's library has grown by a third. Right now Callum is downstairs with Annette, his Infants and Toddlers PT, to whom he's finally acclimatized. She's getting him to do his best T. Rex roars and he seems to be having a blast.
His party turned out great, even though he had a total meltdown right out of the gate and had to retire to his room to get a grip. I told him, "everybody is here to wish you happy birthday," to which he replied "everybody ALL DONE," and cried his eyes out. He kept insisting to go outside even though it was freezing cold and eventually I wrapped him up and took him out for a couple of minutes. Once we were out there, he looked in the window, smiled a huge smile and said, "look at the party!" and when we were back inside, he came around and had a great time. Big credit is due to Nick Barbot for drawing him out in the way that only another kid could have. Kim brought a gluten-free, cow-dairy free, soy-free birthday cake that was actually quite tasty, and Janet and I made spinach pastries. Toni and John came up from Butcher's HIll, and Kim & Bill brought Kim's mom Suzanne along, who had never yet met Callum. And in an unexpected turn, Wino showed up with a card. Besides Callum blowing out the two candles on his cake virtually by himself, I think the highlight of the morning was Bill and Nick staging a Bionicle battle for Callum's benefit - he was totally enthralled and he kept cracking up and saying "that's silly!"

Sunday, January 27, 2008

happy birthday callum


It's been January 27th for about a half-hour. I am exhausted after a long work day, so this is a short one. Callum doesn't officially turn 2 until later this morning, but I think, given how long it's been since we put anything up here, it's a good time to at least say happy birthday. Tomorrow morning we're having a little party (very small: Kim & Bill & Nick, Toni & John, Leyan and her family would have come but they are all getting over colds ... ). Balloons and a LOT of presents for the birthday boy.
No point in getting too deep into it right now, but Cal turning 2 ... it's a pretty big deal.
He's doing great - some issues with his skin (he's got a bit of eczema around his eyes, which has to irritate the living daylights out of him - and drives us crazy too since we are trying just about everything to combat it, with only limited success) but mostly he is healthy and happy. Voracious reader, as always. We also see him getting frustrated more often, which is heartbreaking. But it's not the whole story, and he is just as good at getting out of a bad mood, getting excited and engaged, as ever.
His most quotable quote right now is "don't worry dada, I'll help you!"
As I write, I realize how much there is to take note of - all the new stuff he's doing, saying, all the things we are doing together.
More tomorrow - time to sleep now. Tomorrow is a big day.